Trisomy Awareness Month - Not Textbook, Just Real Life

If you have received a Trisomy diagnosis, you have probably already scoured the internet for information. It is also likely that your search has left you feeling shattered and defeated. Most of the information that is found online and provided by healthcare professionals is from outdated medical textbooks. While it's true that this is a devastating diagnosis, it is not hopeless. Trisomy babies do survive - some trisomy 18 children have defied the odds and lived happily into their late 30's. 

Let's take a glimpse at the other side which is rarely shared with newly diagnosed parents. Information that supports that there are children living with trisomies that have been labelled as 'incompatible with life'.

Below is a list of blogs and Facebook pages created by families with Trisomy diagnoses. I think these children and their stories will give you hope and help you on this journey.

Blogs
www.brandonsmt18journey.com
www.littlefaithtobigfaith.blogspot.com
http://compatiblewithjoy-trisomy18.blogspot.com/
http://mynameissloaneelisabeth.blogspot.com/
https://buddzoo.blogspot.com/
http://noraroseyusko.com/
http://lachlanandt18.blogspot.com.au/
https://www.kinseylenox.blogspot.com/
http://www.santiagosstory.blogspot.com/
https://trisomyjourney.blogspot.ca/






Facebook Pages

Alexander the Great Story
Rosalie's Road: One Baby's Mission to Beat the Odds
Trisomy 13 Living
Brandon's Mosaic Trisomy 18 Journey
Prayers for Small But Mighty Ella Grace
Aurora Reigns Journey
Cora Lynn Journey Trisomy 13
Shelby's Story T18
Compatible with Joy Trisomy 18
Delainey Living With Trisomy 13
Georgia on My Mind T18
Jonah's Journey with Trisomy 18
Believing in Bella
Amelia FT13
Houston Met Ivy in Cincinnati
Team Sivan
Emma's Trisomy 18 Journey
Myla Faith Trisomy 18
Danny's Miraculous Trisomy 18 Adventure
Fierce Georgia on My Mind - A Trisomy 18 Story
Ivy & Her Trisomy 18 Adventures

If you would like to have your blog or Facebook page added to this list, please leave a comment in the section below.

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